Functioning and Disability
Linda K. Nieminen, MD, PhD
PRM specialist
Wellbeing services county of Pirkanmaa
Tampere, Pirkanmaa, Finland
Marilyn Wright, BScPT, MEd, MSc
Clinical Consultant CanChild, Assistant Clinical Professor
McMaster University
Hamilton, Ontario, Canada
Harri Ketamo, PhD
CEO
Headai
Pori, Satakunta, Finland
Danijela Grahovac, MS
Technical Support Specialist, Parent partner
McMaster University, CanChild
Hamilton, Ontario, Canada
Erin Joos, HBSc (Expected graduation May 2026)
Research Assistant
CanChild
Toronto, Ontario, Canada
Sarah Wellman-Earl, MS
Research Coordinator
McMaster University
Hamilton, Ontario, Canada
Kim T. Hesketh, MScPT, BKIH
Implementation Support Specialist
Children's Treatment Network
Barrie, Ontario, Canada
Marla L. Jackson, MPH
Director, Client Services
John McGivney Children's Centre
Windsor, Ontario, Canada
Brendan Wylie-Toal, MS
Director of Research and Innovation
KidsAbility Centre for Child DEvelopment
Ayr, Ontario, Canada
Olivia Ng, PhD, CPsych
Clinical Director
McMaster Children’s Hospital-Hamilton Health Sciences
Hamilton, Ontario, Canada
Peter Rosenbaum, MD
Professor of Pediatrics
CanChild Centre, McMaster University
Hamilton, Ontario, Canada
Olaf Kraus de Camargo, MD
Professor of pediatrics
CanChild/McMaster University
Hamilton,, Ontario, Canada
Children with developmental disabilities require services tailored to functioning-related needs rather than diagnostic categories. Ontario’s SmartStart Hubs provide a central entry point to assessments and services to families who have concerns about their children's development. SmartStart Hubs use the “About My Child” (AMC) questionnaire to collect semi-structured and free-text data from caregivers. This study aims to validate a semantic network-based artificial intelligence algorithm (text-to-ICF algorithm developed by Headai) that performs automated linking of free-text responses to International Classification of Functioning, Disability, and Health (ICF) categories using established linking rules. The goal is to enable ICF-coded data to support service planning and resource allocation.
Design:
Three Children’s Treatment Centres in Ontario will provide 300 anonymized AMC questionnaires. Manual ICF coding by trained raters will serve as the gold standard. The text-to-ICF algorithm, which operates offline and does not learn from input data, will be adapted to English-language AMC responses. Agreement between manual and AI coding will be assessed using Cohen’s Kappa, with a target score of >0.9. Stakeholder feedback will be collected via surveys and townhall meetings.
Results:
Initial manual coding has shown high inter-rater reliability. Algorithm adaptation is underway. The study will evaluate the algorithm’s ability to generalize across languages and cultural contexts, supporting its scalability in international settings.
Conclusion: This project introduces an algorithm validated for automated ICF coding from clinical free-text data. While piloted in pediatric rehabilitation, the algorithm’s prior validation in adult populations supports broader applicability across age groups, clinical domains, and healthcare systems globally. By embedding functioning as a third health indicator alongside morbidity and mortality, this approach contributes to a more holistic understanding of health and disability.